Study to Assess Long-Term Outcomes of Trientine in Wilson Disease Patients Withdrawn From Therapy With d-Penicillamine
- Sponsor
- Univar BV
- Study ID
- NCT02426905
- Phase
- PHASE4
- Status
- Unknown
Conditions
- Wilson Disease
Eligibility Criteria
- Sex
- ALL
- Age
- 1 Year - 90 Years
- Healthy Volunteers
- Not accepted
Interventions
- trientine dihydrochloride — DRUGA retrospective review of patients' medical records
Study Details
A study to review Wilson disease patients who have previously been prescribed d- Penicillamine but were changed to trientine as treatment for their disease, and to follow them for a further 12 months.
Key Dates
- First listed
- Apr 27, 2015
- Start date
- Jan 31, 2016
- Status verified
- Aug 2017
- Primary completion
- May 31, 2018
- Completion
- Jul 31, 2018
Study Design
- Enrollment
- 90 participants (estimated)
- Allocation
- NON_RANDOMIZED
- Intervention model
- SINGLE_GROUP
- Primary purpose
- TREATMENT
Arms
- No Intervention: Retrospective
- Other: Prospective
Primary Outcome Measure
Clinical outcome specific to the retrospective part of the study [ Time Frame: 48 months ]
Related Studies
- Natural History of Wilson DiseaseRecruiting · Yale University · New Haven, Connecticut
- Off Treatment Urinary Copper Excretion in Wilson Disease, Pilot StudyRecruiting · Yale University · New Haven, Connecticut