Utilisation of Health Services and Quality of Life in Patients With Atypical Parkinsonian Syndromes

Sponsor
University Hospital Southampton NHS Foundation Trust
Study ID
NCT06645626
Status
Recruiting
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Conditions

  • Cortico Basal Degeneration
  • Multiple System Atrophy
  • Progressive Supranuclear Palsy

Eligibility Criteria

Sex
ALL
Age
18 Years - N/A
Healthy Volunteers
Not accepted

Study Details

The study will compare health care utilisation and quality of life for patients with progressive supranuclear palsy, corticobasal syndrome and multiple system atrophy in different parts of the region that our specialist clinic operates in with different services as well as in other regions with no specialist clinics. This study aims to investigate which aspects of the service are most beneficial for the patients and to determine the influence of support services and specialty clinics on patients and their carers.

Key Dates

First listed
Oct 17, 2024
Start date
Oct 10, 2022
Status verified
Oct 2024
Primary completion
Aug 31, 2026
Completion
Jul 15, 2027

Study Design

Enrollment
198 participants (estimated)

Arms

  • Arm: UHS Specialist Clinic population
    All patients seen in regional clinic with this diagnosis
  • Arm: Interested patients from non-specialty clinics around the country.
    Interested patients who meet the inclusion criteria and are from any region in the country with no movement disorder specialist clinic.

Primary Outcome Measure

Change in Quality of life score [ Time Frame: Change in quality of life score from enrolment to 12 months of participation ]

Central Contacts

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