Quality of End-of-Life Care for Children With Cancer

Conditions

• Childhood Hematopoietic and Lymphatic System Neoplasm
• Childhood Malignant Solid Neoplasm

Eligibility Criteria

Sex

ALL

Age

18 Years - N/A

Healthy Volunteers

Accepted

Interventions

• Non-Interventional Study — OTHER
  Non-interventional study

Study Details

This study examines the role of access to care, patient/family interactions with the healthcare system, and stress in explaining variations in quality of end-of-life care. The data collected from this study may help researchers develop a model for identifying patients at risk of low-quality end-of-life care as well as recommendations for potential future interventions.

Key Dates

First listed

Feb 17, 2026

Start date

Jul 31, 2026

Status verified

Sep 2026

Primary completion

Jan 31, 2031

Completion

Jan 31, 2031

Study Design

Enrollment

2,425 participants (estimated)

Arms

• Arm: Observational part 1
  The medical records of deceased patients are reviewed on study.
• Arm: Observational part 2
  Bereaved parents complete a survey and may participate in an interview on study.

Primary Outcome Measure

Quality of end of life (EOL) care [ Time Frame: 3 months to 2 years after the child's death ]

Locations (28)

Find similar trials in Birmingham, AL

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