Quality of End-of-Life Care for Children With Cancer

Part of paid clinical trials in Pittsburgh, Pennsylvania.

Sponsor
Children's Oncology Group
Study ID
NCT07412002
Status
Recruiting
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Conditions

  • Childhood Hematopoietic and Lymphatic System Neoplasm
  • Childhood Malignant Solid Neoplasm

Eligibility Criteria

Sex
ALL
Age
18 Years - N/A
Healthy Volunteers
Accepted

Interventions

  • Non-Interventional Study — OTHER
    Non-interventional study

Study Details

This study examines the role of access to care, patient/family interactions with the healthcare system, and stress in explaining variations in quality of end of life care. The data collected from this study may help researchers develop a model for identifying patients at risk of low quality end of life care as well as recommendations for potential future interventions.

Key Dates

Start date
Jun 15, 2026
Status verified
Jun 2026
Primary completion
Jan 31, 2031
Completion
Jan 31, 2031

Study Design

Enrollment
1,190 participants (estimated)

Arms

  • Arm: Observational part 1
    The medical records of deceased patients are reviewed on study.
  • Arm: Observational part 2
    Bereaved parents complete a survey and may participate in an interview on study.

Primary Outcome Measure

Quality of end of life (EOL) care [ Time Frame: Up to study completion, an average of 4 years ]

Locations (1)

FacilityCityStateZIPSite coordinators
Children's Hospital of Pittsburgh of UPMCPittsburghPennsylvania15224
Site Public Contact
[email protected]
412-692-8570
Jean M. Tersak (PRINCIPAL_INVESTIGATOR)

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By research site
Children's Hospital of Pittsburgh of UPMC· Pittsburgh, PA

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