Quality of End-of-Life Care for Children With Cancer

Part of paid clinical trials in Oakland, California.

Sponsor
Children's Oncology Group
Study ID
NCT07412002
Status
Recruiting
Apply to this trial

Conditions

  • Childhood Hematopoietic and Lymphatic System Neoplasm
  • Childhood Malignant Solid Neoplasm

Eligibility Criteria

Sex
ALL
Age
18 Years - N/A
Healthy Volunteers
Accepted

Interventions

  • Non-Interventional Study — OTHER
    Non-interventional study

Study Details

This study examines the role of access to care, patient/family interactions with the healthcare system, and stress in explaining variations in quality of end of life care. The data collected from this study may help researchers develop a model for identifying patients at risk of low quality end of life care as well as recommendations for potential future interventions.

Key Dates

First listed
Feb 17, 2026
Start date
Jun 15, 2026
Status verified
Jul 2026
Primary completion
Jan 31, 2031
Completion
Jan 31, 2031

Study Design

Enrollment
2,425 participants (estimated)

Arms

  • Arm: Observational part 1
    The medical records of deceased patients are reviewed on study.
  • Arm: Observational part 2
    Bereaved parents complete a survey and may participate in an interview on study.

Primary Outcome Measure

Quality of end of life (EOL) care [ Time Frame: Up to study completion, an average of 4 years ]

Locations (15)

FacilityCityStateZIPSite coordinators
Kaiser Permanente-OaklandOaklandCalifornia94611
Site Public Contact
[email protected]
877-642-4691
Aarati V. Rao (PRINCIPAL_INVESTIGATOR)
Alfred I duPont Hospital for ChildrenWilmingtonDelaware19803
Site Public Contact
[email protected]
302-651-5572
Vibhuti Agarwal (PRINCIPAL_INVESTIGATOR)
Memorial Regional Hospital/Joe DiMaggio Children's HospitalHollywoodFlorida33021
Site Public Contact
[email protected]
954-265-1847
Iftikhar Hanif (PRINCIPAL_INVESTIGATOR)
Nemours Children's Clinic-JacksonvilleJacksonvilleFlorida32207
Site Public Contact
[email protected]
302-651-5572
Vibhuti Agarwal (PRINCIPAL_INVESTIGATOR)
Nemours Children's HospitalOrlandoFlorida32827
Site Public Contact
[email protected]
302-651-5572
Vibhuti Agarwal (PRINCIPAL_INVESTIGATOR)
Nemours Children's Clinic - PensacolaPensacolaFlorida32504
Site Public Contact
[email protected]
Jeffrey H. Schwartz (PRINCIPAL_INVESTIGATOR)
Sinai Hospital of BaltimoreBaltimoreMaryland21215
Site Public Contact
410-601-9083
Jason M. Fixler (PRINCIPAL_INVESTIGATOR)
Corewell Health Grand Rapids Hospitals - Helen DeVos Children's HospitalGrand RapidsMichigan49503
Site Public Contact
[email protected]
616-391-1230
Kathleen Y. Butler (PRINCIPAL_INVESTIGATOR)
Bronson Methodist HospitalKalamazooMichigan49007
Site Public Contact
[email protected]
616-391-1230
Kathleen Y. Butler (PRINCIPAL_INVESTIGATOR)
Albany Medical CenterAlbanyNew York12208
Site Public Contact
518-262-5513
Lauren R. Weintraub (PRINCIPAL_INVESTIGATOR)
Montefiore Medical Center - Moses CampusThe BronxNew York10467
Site Public Contact
[email protected]
718-379-6866
Alice Lee (PRINCIPAL_INVESTIGATOR)
Children's Hospital of Pittsburgh of UPMCPittsburghPennsylvania15224
Site Public Contact
[email protected]
412-692-8570
Jean M. Tersak (PRINCIPAL_INVESTIGATOR)
Rhode Island HospitalProvidenceRhode Island02903
Site Public Contact
401-444-1488
Bradley DeNardo (PRINCIPAL_INVESTIGATOR)
UT Southwestern/Simmons Cancer Center-DallasDallasTexas75390
Site Public Contact
[email protected]
214-648-7097
Ksenya Shliakhtsitsava (PRINCIPAL_INVESTIGATOR)
University of Virginia Cancer CenterCharlottesvilleVirginia22908
Site Public Contact
[email protected]
434-243-6303
Brian C. Belyea (PRINCIPAL_INVESTIGATOR)

Find similar trials in Oakland, CA

By research site
Kaiser Permanente-Oakland· Oakland, CAAlfred I duPont Hospital for Children· Wilmington, DEMemorial Regional Hospital/Joe DiMaggio Children's Hospital· Hollywood, FLNemours Children's Clinic-Jacksonville· Jacksonville, FLNemours Children's Hospital· Orlando, FLNemours Children's Clinic - Pensacola· Pensacola, FL

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