Social Media Connectedness in Fibromyalgia

Part of paid clinical trials in The Bronx, New York.

Sponsor
Albert Einstein College of Medicine
Study ID
NCT07715877
Status
Completed

Conditions

  • Fibromyalgia (FM)
  • Social Connection
  • Suicidal Thoughts

Eligibility Criteria

Sex
ALL
Age
18 Years - N/A
Healthy Volunteers
Not accepted

Interventions

  • Social Media — BEHAVIORAL
    Participants were invited to join a closed group to facilitate discussion about their experiences with fibromyalgia and offer social support.

Study Details

Patients suffering from fibromyalgia commonly experience depressive symptoms such as loneliness and hopelessness due to the nebulousness of the disease. A primary purpose of social media is to promote connectedness, which is associated with improved well-being. Using archival, de-identified data collected by a social media company, this study aims to explore whether connectedness among patients with fibromyalgia facilitated by social media can improve mental and physical health outcomes.

Key Dates

First listed
Jul 21, 2026
Start date
Jan 19, 2023
Status verified
Jul 2026
Primary completion
Oct 31, 2023
Completion
Oct 31, 2023

Study Design

Enrollment
1,041 participants (actual)

Arms

  • Arm: Treatment as usual (TAU)
    Participants used the platform as usual (e.g., log in, read stories).
  • Arm: Enhanced TAU (e-TAU)
    Participants received specialized emails from the platform containing user-generated stories featuring lived experience with fibromyalgia that were identified as helpful for increasing social connectedness/support and hope, in addition to typical platform use.
  • Arm: Enhanced TAU + group (e-TAU+G)
    In addition to receiving the specialized emails with supportive narratives, participants were invited to join a closed group of other people with fibromyalgia that would facilitate communication amongst members.

Primary Outcome Measure

Perceived Shared Experiences [ Time Frame: Weeks 6, 12, and 18 ]

Locations (1)

FacilityCityStateZIPSite coordinators
Albert Einstein College of MedicineThe BronxNew York10461-

Find similar trials in The Bronx, NY

By research site
Albert Einstein College of Medicine· The Bronx, NY

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