The Appendix Cancer PMP Research Foundation Natural History Study/Patient Registry

Part of paid clinical trials in Springfield, Pennsylvania.

Sponsor
Appendix Cancer Pseudomyxoma Peritonei Research Foundation
Study ID
NCT07769346
Status
Recruiting
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Conditions

  • Appendix Cancer
  • Pseudomyxoma Peritonei

Eligibility Criteria

Sex
ALL
Age
N/A - N/A
Healthy Volunteers
Not accepted

Study Details

ACPMP's first-ever patient-powered global patient registry/natural history study collects patient and caregiver information and data to fuel clinical trials and drive breakthroughs for appendix cancer and PMP. We've invested the time and resources to make our Registry regulatory grade. Our Registry operates under active, ongoing Institutional Review Board (IRB) oversight by independent ethicists. It is powered by NORD's IAMRARE®, an industry gold standard platform built to be consistent with FDA's best thinking on natural history studies.

Key Dates

First listed
Aug 17, 2026
Start date
Feb 2, 2026
Status verified
Aug 2026
Primary completion
Feb 1, 2030
Completion
Feb 1, 2030

Study Design

Enrollment
10,000 participants (estimated)

Arms

  • Arm: Participants with Appendix Cancer and/or Pseudomyxoma Peritonei (PMP)
    Individuals diagnosed with appendix cancer and/or Pseudomyxoma Peritonei (PMP) who enroll in the ACPMP Research Foundation Appendix Cancer/PMP Patient Registry. Participants, caregivers, or authorized representatives provide health and disease-related information through online surveys and may periodically update their information over time.

Primary Outcome Measure

Natural history and clinical course of appendix cancer and Pseudomyxoma Peritonei (PMP) [ Time Frame: Up to 5 years ]

Central Contacts

Locations (1)

FacilityCityStateZIPSite coordinators
ACPMPSpringfieldPennsylvania19064
Margaret Najarian Patient Registry Coordinator
[email protected]
(833) 227-6773

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By research site
ACPMP· Springfield, PA

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