To Share or Not To Share: Navigating Disclosure and Stigma Among Family Caregivers of Autistic Young Adults_Group Intervention
Part of paid clinical trials in Madison, Wisconsin.
- Sponsor
- University of Wisconsin, Madison
- Study ID
- NCT07856927
- Status
- Recruiting
Conditions
Eligibility Criteria
- Sex
- ALL
- Age
- N/A - N/A
- Healthy Volunteers
- Not accepted
Interventions
- Group Intervention — OTHERSix 60-min virtual sessions Surveys before and after program intervention Optional post-intervention interview
Study Details
This study is a caregiver support program for family caregivers of autistic young adults (ages 18 to 26) as their family members navigate young adulthood. The program includes six 60-minute virtual sessions focused on making sense of caregiving roles during young adulthood, reflecting on everyday family experiences, supporting decision-making within families, deciding when and how to share experiences with others, and thinking about the future.
Key Dates
- First listed
- Oct 5, 2026
- Start date
- Sep 17, 2026
- Status verified
- Sep 2026
- Primary completion
- Jun 30, 2027
- Completion
- Jun 30, 2027
Study Design
- Enrollment
- 50 participants (estimated)
- Allocation
- NA
- Intervention model
- SINGLE_GROUP
- Primary purpose
- SUPPORTIVE_CARE
Arms
- Experimental: Family CaregiversFamily Caregivers of Autistic Young Adults
Primary Outcome Measure
Devaluation of Consumer Families (DCFS) Scale [ Time Frame: baseline (pre-intervention) and 6 weeks (post-intervention) ]
Central Contacts
- Sang Qin, PhD
Locations (1)
| Facility | City | State | ZIP | Site coordinators |
|---|---|---|---|---|
| University of Wisconsin | Madison | Wisconsin | 53705 | - |
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