Our Peers - Empowerment and Navigational Support - Community Living (OP-ENS-CL): A Peer Navigator Intervention for Adults With Acquired Physical Disabilities

Part of paid clinical trials in Chicago, Illinois.

Sponsor
Susan Magasi
Study ID
NCT06941233
Status
Recruiting

Conditions

  • Disabled Persons

Eligibility Criteria

Sex
ALL
Age
18 Years - N/A
Healthy Volunteers
Not accepted

Interventions

  • Our Peers - Empowerment and Navigational Support - Community Living (OP-ENS - CL) — BEHAVIORAL
    Op-ENS - CL is a 12-month, remote delivered peer navigator intervention. Participants will meet with a trained peer navigator who mentors nad supports them through a manualized process of collaborative conversations, barrier identification, asset mapping, goal setting, and action planning along with on-going social support and information sharing.

Study Details

The goal of this clinical trial is to learn if a remote peer navigator intervention (OP-ENS - CL) for people with newly acquired physical disabilities returning to community living after rehabilitation improves self-reported social support, health, and community participation. The main questions it aims to answer are: Do people with acquired physical disabilities who receive the remote peer navigator intervention experience greater social support and self-efficacy than people in the control group? Do people with acquired physical disabilities who receive the remote peer navigator intervention have better self-reported health and social participation outcomes than people in the control group? Is the OP-ENS - CL intervention acceptable to people with newly acquired physical disabilities returning to community living?

Key Dates

First listed
Apr 23, 2025
Start date
Dec 1, 2025
Status verified
Aug 2026
Primary completion
Aug 31, 2027
Completion
Aug 31, 2027

Study Design

Enrollment
100 participants (estimated)
Allocation
RANDOMIZED
Intervention model
PARALLEL
Primary purpose
SUPPORTIVE_CARE

Arms

  • Experimental: OP-ENS - CL Intervention
    Participants will be matched with a peer navigator. As part of this complex behavioral intervention, participants and peer navigators will engage in a systematic process of barrier and strength identification, goal setting and action planning related to issues of healthcare access and quality. Participants and peers will meet remotely at least monthly over the course of the 12-month study period (but frequency is determined by participant need). Given the nature of the disability and community living experience, we anticipate the needs and therefore frequency will fluctuate over the duration of the study period. Beginning in month 10, participants and peers will engage in a period of transition planning to ensure that participants have the strategies and supports in place to assume the role of their own navigator.
  • No Intervention: Usual Care
    Participants randomized to the usual care group will continue with their usual health, healthcare, and community living services routines. Participants in the usual care group will receive a monthly newsletter with general interest information relevant to the disability community.

Primary Outcome Measure

Patient Activation Measure [ Time Frame: Baseline, 6 months, 13 months. ]

Central Contacts

Locations (2)

FacilityCityStateZIPSite coordinators
Shirley Ryan Ability LabChicagoIllinois60612
Elliot Roth, MD
312-238-1657
Sarah Zera, OTD, OTR/L
312-210-0523
Elliot Roth, MD (PRINCIPAL_INVESTIGATOR)
University of Illinois Chicago, Department of Occupational TherapyChicagoIllinois60612
Susan Magasi, PhD
312-996-4603
Susan Magasi, PhD (PRINCIPAL_INVESTIGATOR)

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