Adapting the STRW Intervention for Adolescents and Young Adults With Epilepsy (ARGOS)

Part of paid clinical trials in Cincinnati, Ohio.

Sponsor: Children's Hospital Medical Center, Cincinnati
Study ID: NCT07676539
Status: Active Not Recruiting

Conditions

Activities, Daily Living
Epilepsy
Epilepsy in Youth

Eligibility Criteria

Sex: ALL
Age: 14 Years - 19 Years
Healthy Volunteers: Not accepted

Interventions

Surviving and Thriving in the Real World — BEHAVIORAL
The STRW intervention consists of 15 weekly caregiver-teen dyad sessions and 14 concurrent weekly caregiver group sessions delivered via Microsoft Teams. Daily Living Skills (DLS) targeted in the intervention include: morning routine, laundry, kitchen/cooking, grocery shopping, and money management. Evidence-based strategies are utilized to facilitate acquisition, mastery, and generalization of specific DLS at home and in the community. During dyad sessions, teens work on DLS in their home environment and will receive coaching and instruction from both their caregiver and the therapist. During caregiver group sessions, the therapist will discuss the content of dyad sessions and engage in problem solving with each caregiver.

Study Details

The goal of this clinical trial is to learn if a telehealth intervention (Surviving and Thriving in the Real World; STRW) is helpful to improve daily living skills for teens and young adults with epilepsy. It will also learn about the acceptability, feasibility, and satisfaction of the intervention. The main questions it aims to answer are: * Is STRW an acceptable, feasible, and satisfactory intervention for teens/young adults and their caregivers? * Does STRW improve daily living skills (e.g., cooking, laundry, money management) for teens and young adults with epilepsy? This is a nonrandomized pilot trial and all participants who enroll will: * Participate in weekly caregiver/teen dyads ( approximately 60 minutes) focused on improving daily living skills with a trained therapist for 15 weeks. * Participate in weekly caregiver groups (approximately 90 minutes) focused on supporting caregivers in coaching their teens in daily living skills development led by 2 trained therapists for 14 of the 15 intervention weeks. * Complete measures of adaptive functioning (to evaluate daily living skills; parent and teen-report) at the start of the study and post-intervention. Additional measures will also be collected. * Have the option to complete post-intervention interviews to provide feedback on the intervention components.