HOBSCOTCH-YOUTH and Young Adults

Conditions

• Cognitive Dysfunction, Cognitive Disorder
• Epilepsy
• Memory and Thinking Problems

Eligibility Criteria

Sex

ALL

Age

13 Years - 29 Years

Healthy Volunteers

Not accepted

Interventions

• HOBSCOTCH/HOBSCOTCH-YOUTH — OTHER
  HOBSCOTCH (HOme Based Self-Management and COgnitive Training CHanges Lives) is a home-based self-management program to treat cognitive symptoms and improve quality of life, while minimizing the barriers of access to care, for people with epilepsy and other neurological disorders. The program is based on Problem Solving Therapy (PST) and teaches problem solving strategies and compensatory mechanisms to help manage cognitive dysfunction and enhance quality of life. HOBSCOTCH-YOUTH is an adaptation of the HOBSCOTCH program for youth ages 13 - 17 who have epilepsy.

Study Details

The goal of this clinical trial is to learn more about the home-based epilepsy self-management program, HOBSCOTCH, for improving cognitive function (thinking and memory) and quality of life specifically in young adults, ages 18 - 29 years, who have epilepsy. It will also learn if a modification of the program for youth with epilepsy, ages 13 - 17, improves thinking and memory and quality of life and reduces stress for their parents. Researchers will enroll 260 young adults with epilepsy and 40 youth with epilepsy and their parent or guardian. Researchers will compare responses to questionnaires and surveys before and after participation in the HOBSCOTCH program to see if thinking, memory and quality of life have improved for young adults and youth with epilepsy and to see if parents have improved quality of life as well. Participants will: * Attend 9 weekly one-hour sessions of the HOBSCOTH program in their homes with a one-on-one coach using their computer or their phone; youth with epilepsy (ages 13 - 17) will attend alongside a parent or legal guardian. * Keep a short daily diary about their seizures and activity in the program using a smart phone app(lication) * Complete surveys and questionnaires before HOBSCOTCH and 3 months and 6 months later. There are no study visits to a medical center. HOBSCOTCH is a virtual or telehealth intervention.

Key Dates

First listed

Jul 30, 2026

Start date

Sep 1, 2026

Status verified

Jul 2026

Primary completion

Sep 1, 2028

Completion

Mar 1, 2029

Study Design

Enrollment

300 participants (estimated)

Allocation

NA

Intervention model

SINGLE_GROUP

Primary purpose

HEALTH_SERVICES_RESEARCH

Arms

• Other: HOBSCOTCH-YOUTH and Young Adults Intervention
  Participants will receive the HOBSCOTCH (ages 18-29) or HOBSCOTCH-YOUTH (ages 13 -17) program consisting of 1:1 sessions delivered once per week including: * 1 pre-HOBSCOTCH Session (on webcam or by phone); * 1 educational session (on webcam); * 6 HOBSCOTCH intervention sessions (webcam or by phone); * 1 wrap-up and maintenance planning session.

Primary Outcome Measure

Change in quality of life as measured by comparing QOLIE-10 scores at baseline to 3 months and 6 months post HOBSCOTCH intervention in young adults with epilepsy (YAWE) [ Time Frame: Baseline, 3 months and 6 months post HOBSCOTCH intervention ]

Central Contacts

• Wren M Kaden, BA
  603-650-4225
  [email protected]
• Trina K Dawson, BA
  603-650-4225
  [email protected]

Locations (1)

Find similar trials in Lebanon, NH

Related Studies

• Human Intracranial Electrophysiology
  Recruiting · Dartmouth-Hitchcock Medical Center · Lebanon, New Hampshire
• Self-administered ONe-of-a Kind Approach to Epilepsy Therapy Through a Web-based Music Application
  Recruiting · Dartmouth-Hitchcock Medical Center · Worcester, Massachusetts
• Subcortical Arousal in Perceptual Awareness
  Recruiting · Yale University · New Haven, Connecticut
• Effects of Social Feedback on Intracranial EEG
  Recruiting · Trustees of Dartmouth College · Lebanon, New Hampshire